About Benjamin

Benjamin_PortraitBenjamin is 20 (born 1996) and has severe learning difficulties, does not talk at all and is autistic.  Among other issues he has epilepsy.
His epilepsy is generally well controlled with medication (he has a couple of seizures a year), but when he does have a seizure it tends to be a big one (tonic-clonic or grand-mal – the classic limb shaking eplleptic seizure).

Early in 2013 he had a large seizure and stopped breathing completely.  We ended up resuscitating him followed by a blue light trip to hospital.

I had installed a simple analogue video monitor system in our house several years ago when he started having fits so we can keep an eye on him to make sure he is ok.  I just happened to notice his large fit because I looked up while we were having breakfast and thought his movement looked a bit odd on the screen.  This is fine, but you have to be looking at the screen for it to be any use.

This got me thinking that it would be good to have something that would raise an alarm to tell us he was having a fit, rather than relying on us watching a monitor. So in about February 2013 I started work on a seizure detector for Benjamin, and this project is the result (I don’t do anything quickly!).

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